Saturday 30 March 2013

Fast forward a month or FOUR!

I do not normally ride roller coasters, but boy, had no choice on this ride. A HUGE learning curve. Thank goodness for the Day Center, the wonderful Care Manager, and WINE! Signing on to the AgingCare website has been a huge help too. Usually read a couple of articles every night to savvy up on what to expect, how to deal with a current problem or situation, which can range from frequent trips to the toilet to aggression.

Obaachan is OFF the medication. It was horrible. For her, for us. Soon after arriving here, we took her to all the necessary clinics: dentists, doctors, and day service. Had her registered and diagnosed as a patient with dementia, Level Two according to the City Office Health Department.

The two "packs" of medication per day made her into a walking zombie with frequent spurts of lashing out at us, anyone. Verbally and physically. How frustrating for her! We finally asked the doctor, who is an expert with elderly patients, to opt for a better quality of life. He agreed.....sigh! She's down to 4 pills a day to deal mostly with her high blood pressure. AND obaachan is BACK!

When I say back, it doesn't necessarily mean a sweet angelic little Japanese old lady. Oh no, no, no! It means the feisty, fiery one of the past. HA! But anything is better than the pathetic shell that we had unwittingly created.

A recent visit back to the MRI shows her dementia is worsening. Could have saved hubby a lot of money if he'd listened. She's having difficulty structuring a full sentence. Most requests are by instinct and via commands. Her memory span is clearly shorter. A good thing sometimes? Perhaps. Which is worse, losing it or knowing you're losing it?

Wanting to sleep all day is an issue but the Care Manager, from obaachan's fabulous Day Care Clinic, assured us it's better to let her sleep only 30 minutes morning and night to ensure an easy night, again both for her and us. She has been getting up more in the evening, until about midnight, calling out for me upstairs. Seems she's unaware it's night and is lonely, as she said. I'm not formally at a job now, however, keeping up with her schedule and two young boys, keeping a spotless house (yes, I AM a clean freak!) and laundry is REALLY a 25 hours a day job! It's quite physically and mentally exhausting.

Her son, my hubby, is still living in the US. Yes, everyone scoffs at that but, it is our choice. He wants to live in the US, loves his work, and I don't have a problem with that. I personally prefer to be in Japan, where I can look after his mother, and give the boys an excellent education. We skype pretty much every morning. He does huge amounts for us, even while living in another country, and supports everything we do here in Japan. His visits every 3 months are busy but meaningful. I feel we see more of him now than when we lived in the same house. We have moved on from the nucleur family structure creating our own style, and it is working for us. I can still shout, just at a computer image now.


2 comments:

  1. Just wonderung...are you okay???? You started this blog and then life was SO horrendous you don't have time to come back???? are you ok??

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  2. Ha, yes we're OK. Thanks for your concern. You hit the nail on the head, life has been incredibly hectic, busy, physically and mentally draining.....and that's BEFORE I do anything for the boys. Wish I could write more as the last year, yes one year in 3 weeks! has also been an interesting learning curve. If you're embarking on the journey of caring for a dementia patient, there is a LOT to come. My only saving point has been the network of helpers, from Care Manager at the day center to lovely Saitosan, not a shiyakusho helpersan but from a company we found, to my son's friend's mums, who let my youngest play at their house or carpool at weekends.

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